Participants who chose not to learn their results said it would place a burden on themselves and their family members. As scientific understanding of how Alzheimer’s disease develops continues to advance, researchers are increasingly able to offer healthy study participants the chance to learn their personal risk of developing Alzheimer’s-related dementia. Although many organizations encourage […]



Summary

Some individuals in Alzheimer’s research studies decline to learn their genetic risk, citing potential burdens on themselves and family. While scientific advancements increasingly allow researchers to offer this information to healthy participants, concerns remain. These concerns likely stem from the emotional and practical implications of knowing one’s predisposition to the disease, highlighting the complex ethical considerations surrounding genetic testing for late-onset conditions.

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