Blood taken from Danish babies ended up in huge genetic study—without consent – New Study
The iPsych project, which investigates the genetics of psychiatric disorders, has sent 140,000 opt-out notices amid backlash
Summary
The iPsych project, a large-scale Danish study researching the genetic basis of psychiatric disorders, is facing controversy and has issued 140,000 opt-out notices. This action follows criticism surrounding the project’s data handling, raising concerns about patient privacy and informed consent. The opt-out notices allow participants to withdraw their data from the study, reflecting a response to public and scientific scrutiny regarding ethical considerations in genetic research involving sensitive personal information. The large number of notices suggests widespread unease and highlights the challenges of balancing research goals with protecting individual rights.
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